{"id":301,"date":"2026-02-28T13:26:27","date_gmt":"2026-02-28T12:26:27","guid":{"rendered":"https:\/\/adeapaf.org\/?p=301"},"modified":"2026-02-28T13:26:29","modified_gmt":"2026-02-28T12:26:29","slug":"dia-mundial-de-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/adeapaf.org\/?p=301","title":{"rendered":"D\u00eda Mundial de Enfermedades Raras"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">\ud83c\udf40Hoy es el D\u00eda Mundial de las Enfermedades Raras\ud83c\udf40<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Nos sumamos a la campa\u00f1a de Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por cada persona que convive con una enfermedad poco frecuente.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por quienes segu\u00eds en b\u00fasqueda de un diagn\u00f3stico, sin rendiros.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por las familias que acompa\u00f1\u00e1is cada paso, cada consulta, cada incertidumbre.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por los profesionales, investigadores y entidades.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Hoy alzamos la voz con un mensaje claro: #PorqueCadaPersonaImporta \u2728<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\ud83d\udcca M\u00e1s de 3,4 millones de personas en Espa\u00f1a conviven con estas patolog\u00edas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u23f3 La espera media para un diagn\u00f3stico supera los 6 a\u00f1os.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\ud83d\udc8a Solo el 6% cuenta con tratamiento farmacol\u00f3gico.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Y ante esta realidad decimos alto y claro:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Lo raro no son las personas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Lo raro es la desigualdad. \u2696\ufe0f<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Seguimos trabajando por la equidad en investigaci\u00f3n, en diagn\u00f3stico y en tratamiento.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Seguimos impulsando cambios.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Seguimos caminando juntos. \ud83e\udd1d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Hoy recordamos que cada persona importa \ud83d\udc9c<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"814\" height=\"1024\" data-id=\"302\" src=\"https:\/\/adeapaf.org\/wp-content\/uploads\/2026\/02\/IMG_0025-814x1024.jpeg\" alt=\"\" class=\"wp-image-302\" srcset=\"https:\/\/adeapaf.org\/wp-content\/uploads\/2026\/02\/IMG_0025-814x1024.jpeg 814w, https:\/\/adeapaf.org\/wp-content\/uploads\/2026\/02\/IMG_0025-239x300.jpeg 239w, https:\/\/adeapaf.org\/wp-content\/uploads\/2026\/02\/IMG_0025-768x966.jpeg 768w, https:\/\/adeapaf.org\/wp-content\/uploads\/2026\/02\/IMG_0025.jpeg 1018w\" sizes=\"auto, (max-width: 814px) 100vw, 814px\" \/><\/figure>\n<\/figure>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-2 is-layout-flex wp-block-gallery-is-layout-flex\"><\/figure>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-3 is-layout-flex wp-block-gallery-is-layout-flex\"><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-4 is-layout-flex wp-block-gallery-is-layout-flex\"><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\ud83c\udf40Hoy es el D\u00eda Mundial de las Enfermedades Raras\ud83c\udf40 Nos sumamos a la campa\u00f1a de Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras Por cada persona que convive con una enfermedad poco frecuente. Por quienes segu\u00eds en b\u00fasqueda de un diagn\u00f3stico, sin rendiros. Por las familias que acompa\u00f1\u00e1is cada paso, cada consulta, cada incertidumbre. Por los profesionales, investigadores&hellip;&nbsp;<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"","neve_meta_content_width":0,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-301","post","type-post","status-publish","format-standard","hentry","category-campanas"],"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/posts\/301","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/adeapaf.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=301"}],"version-history":[{"count":1,"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/posts\/301\/revisions"}],"predecessor-version":[{"id":303,"href":"https:\/\/adeapaf.org\/index.php?rest_route=\/wp\/v2\/posts\/301\/revisions\/303"}],"wp:attachment":[{"href":"https:\/\/adeapaf.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=301"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/adeapaf.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=301"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/adeapaf.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=301"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}